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Why
won't they tell me what I am taking?
Medical research studies
on investigational treatments compare the health outcomes of people taking
an investigational treatment against those taking a treatment that has
already been approved and is in common use (also called the "standard
treatment"), or no treatment at all. The people who receive the investigational
treatment are called the intervention group and the group who get the
standard treatment or no treatment are called the control group or the
"placebo group." The word "placebo" means an inactive
treatment that is made to look, feel, and taste like the investigational
treatment, but does not contain any active ingredient.
The goal of clinical
trials is to find out if a new treatment works or does not work. Placebos
are used because we know that a portion of the people who receive an investigational
treatment will get better just because they believe that taking a pill
(or getting other treatment) will make them better. By giving some volunteers
a placebo and comparing their response to the response of those volunteers
who receive the actual treatment, researchers can find out if the investigational
treatment really works.
If you are thinking
about volunteering for a study that includes a placebo group, remember
that you may not receive the investigational treatment. In fact, you will
not know which group you are in until the study is completed.
The scientist and
physicians who do this kind of medical research do their best to make
sure that their hope for a successful study does not influence the study's
results. Scientists refer to this as study bias. One way that this might
happen is if the researchers decide who gets to be in the intervention
and control groups (like choosing sides for a basketball game). To avoid
this bias, study volunteers are assigned to either the intervention or
the control group at random. This randomization makes sure that the treatment
group and the control group are similar.
Another way
that researchers avoid bias is by making sure that the person who
knows which treatment (new, standard, or none) a volunteer receives
is not the same person who sees the volunteer in the clinic and
determines whether the volunteer is doing better or worse. This
is referred to as a double-blind study, since neither the volunteer
nor the person measuring the effects of the treatment knows which
treatment the volunteer is actually getting.
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